2.11.2014
Social Participation of People with Williams Syndrome
Lertka Kratochviiova
Madrid 2014 Asociacion Sindrome Williams de Espafia
Overview
■ Presentation of research
• Aim of research
• Areas of interest
• Respondents
• Outcome
• Discussion and recommendations
Presentation of research
• Focus on adults with WS
• Interviews with people with WS
• Speaking about their lives, changes and wishes
Aim of research
• To analyse extent of participation of people with WSin society
- How person with WS perceives his place in the family surroundings?
- What are life wishes, desires and expectations of people with WS?
- How does educational and working process take place?
- How do people with WS spend their free time?
Areas of interest
• Family and relashionships - own family, independent living
• Productive activities - education, job, volunteering
• Social activities - free time, hobbies, leisure activities, dreams
Respondents
• Czech Republic - 3 respondents (21, 22, 23)
• Slovak Republic-3 respondents (34, 23, 30) « Germany - 3 respondents (30,20,43)
• Women-4
• Men-5
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2.11.2014
Outcome
Family and relashionships
— Good relashionships with close and distant family
- Two of them live alone in protected house
- All of them want a partner, perhaps even to get married
— None wants a child
Productive activities
—Three of them have a job (sheltered)
- Three of them still visit the school -Two of them have volunteered
- Helping with housework
Social activities
- Activities on internet
- Going out with friends -Being alone
- Music -Travelling -Clubs
Discussion and recommendations
Attachment between mother and child in adulthood -needs to be eliminated Support of partnership
Encouragement and preparation for living on their own Expand social services into smaller towns Focus on perspective apprenticeship; volunteering Providing courses/workshop - English, travelling, cooking, sport, bowling,,..
Counseling - money, insurance, self-sufficiency, how to look for a job and others
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