"Rare diseases comprise from 5000 to 8000 lifethreatening or chronically debilitating diseases which together affect from 27 and 36 million people in the European Union. 💊 A lack of efficient treatment and accurate diagnosis for the majority of rare diseases represents an enormous unmet medical need and a major challenge for public health. " (Directorate-General for Research and Innovation (European Commission)

👁️ This seminar talks about an area in global health very often overlooked-  members of society suffering from rare diseases. Topics will include access to medicines, the pricing mechanisms involved with orphan drugs and potential connections with personalised medicine.