European Deafblind Union – www.edbu.eu Historie Evropských prázdnin/Evropského kulturního a rehabilitačního týdne pro osoby s HS: http://www.edbu.eu/previous-events/ National Members and associated members of EDbU List of National Members of EDbU: National organizations of people with deafblindness: Belgium: VZW Anna Timmermanvereniging (A.T. vzw). Address: Snaggaardstraat 9, 8000 Brugge, Belgium. Founded: 1983 Registered: Organization -, Company number: 428770484 Registration number: 1706/85; Date of membership: 22.10.03, Fredricia, Denmark. E-mail: info@annatimmerman.be President: Peter Vanhoutte; E-mail: lormpeter@telenet.be National representative from Belgium to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark: Peter Vanhoutte * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Leo Cleyman * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Peter Vanhoutte Bulgaria: National Association of the Deafblind in Bulgaria (NADbBg) Address: Post office box # 29, postal code: 4000, Plovdiv, Bulgaria. Founded: August 15, 1997 Registered: October 22, 1997 Organization -, Company number: 115173977 Registration number; Date of membership: 22.10.03, Fredricia, Denmark. E-mail: nadbbg@mbox.contact.bg. President: Dimitar Parapanov; E-mail: nadbbg@mbox.contact.bg National representative from Bulgaria to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Dimitar Parapanov * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Dimitar Parapanov * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Dimitar Parapanov Croatia: Croatian Association of Deafblind Persons DODIR. Address: Vodnikova 8, Zagreb 10 000, Croatia. Founded: December, 1994 Registered: Organization - , Company number: 1239473. Registration number: 00000088. Date of membership: 22.10.03, Fredricia, Denmark. E-mail: dodir@dodir.hr; world@dodir.hr. President: Sanja Tarczay; E-mail: sanja@dodir.hr, tekstovi@dodir.hr National representative from Croatia to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Sanja Tarczay * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Sanja Tarczay * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Sanja Tarczay Czech Republic: VIA Civic Deafblind Association. Address: K Vodojemu 29, 150 00 Praha 5, Czech Republic. Founded: February 19, 1999 Registered: March 9, 1999 Organization -, Company number: 69060169. Registration number: VS/1-1/39374/99-R. Date of membership: 22.10.03, Fredricia, Denmark. E-mail: jajakes@volny.cz. President: Jan Jakes; E-mail: jajakes@volny.cz National representative from Czech Republic to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Jan Jakes * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Jan Jakes * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: no representative Denmark: Foreningen Danske DøvBlinde (FDDB) The Danish Association of the Deafblind (New name from 21.06.2011) Address: Kløverprisvej 10 B, DK – 2650 Hvidovre, Denmark. Founded: June 27, 1987 Registered: Organization -, Company number: Registration number: Date of membership: Interim Board: 03.09.99, Tampere, Finland and Officially member: 22.10.03, Fredricia, Denmark. E-mail: fddb@fddb.dk. President: Bjarne Hvidsten, E-mail: : maxim700@live.dk National representative from Denmark to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Owe Bejsnap * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Kirsten Malmbak * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: no representative Note: Previous name: Foreningen af Danske DøvBlinde (FDDB) England: British Deafblind Association (BDBA) Address: 20 Church Close, PE6 7RA, Newborough, Peterborough, England Founded: January 2013 Registered: Organization -, Company number: Registration number; Date of membership: 22.05.13, Plovdiv, Bulgaria E-mail: british.deafblind.association@gmail.com President: Julie Rana; E-mail: specialist.db.consultancy@gmail.com National representative from England to: * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Julie Rana Finland: Suomen Kuurosokeat ry Föreningen Finlands Dövblinda rf The Finnish Deafblind Association Address: Marjaniementie 74, Itäkeskus, Helsinki Founded: December 16, 1971 Registered: Organization -, Company number: Registration number: Date of membership: Interim Board: 03.09.99, Tampere, Finland and Officially member: 22.10.03, Fredricia, Denmark. E-mail: kuurosokeat@kuurosokeat.fi President: Seppo Jurvanen, E-mail: seppo.jurvanen@pp.inet.fi National representative from Finland to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Ulla Kungas * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Seppo Jurvanen * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Seppo Jurvanen France: Association Française de la surdicécité (AFS) Address: 44 rue Georges Haendel, 91540 Mennecy, France Founded: August 20, 2009 Registered: Organization -, Company number: 515 391 514 00012 Registration number: w912002342 Date of membership: 22.05.2013, Plovdiv, Bulgaria E-mail: afsurdicecite@orange.fr President: Annie Van Espen, E-mail: afsurdicecite@orange.fr National representative from France to: * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Annie Van Espen AFS replaces ANPSA as the national member association from France from 22.05.13. ANPSA was national member 2008-2013, and associated member from 22.05.13. Germany: Bundesarbeitsgemeinschaft der Taubblinden (BAT) Federal Association of the Deafblind Address: Bösenberg 61c, 46514 Schermbeck, Deutschland Founded: October 3, 2003 Registered: Organization -, Company number: Registration number: VR2443 Date of membership: 22.10.03, Fredricia, Denmark and 28.04.08, Zagreb, Croatia. E-mail: dieter.zelle@bundesarbeitsgemeinschaft-taubblinden.de President: Dieter Zelle National representative from Germany to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Dieter Zelle * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Uwe Zelle * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: no representative Name before October 28, 2008 :Deutscher Kulturverein der gehörlosen Sehnbehinderten und Taubblinden (DKT) (founded October 3, 2003). After October 28, 2008: Bundesarbeitsgemeinschaft der Taubblinden (BAT). Hungary: Siketvakok Országos Egyesülete. The Hungarian Deafblind Association Address: Ajtósi Dürer sor 39, 1146 Budapest, Hungary. Founded: April 13, 1994 Registered: Organization -, Company number: Registration number: 5796 Date of membership: 22.10.03, Fredrica, Denmark E-mail: siketvakok@gmail.com President: Tamás Gangl; E-mail: gangltamas@gmail.com National representative from Hungary to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Tamás Gangl * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Tamás Gangl * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Miklös Soltész Iceland: Fjóla - félag fólks með samþætta sjón- og heyrnarskerðingu. The Deafblind Association of Iceland Address: Hamrahlíð 17, 105 Reykjavik, Iceland. Founded: March 8, 1994 Registered: Organization -, Company number: Registration number: Date of membership: Interim Board: 03.09.99, Tampere, Finland and Officially member: 22.10.03, Fredricia, Denmark. E-mail: sjonogheyrn@simnet.is President: Guðlaug Erlendsdottir; E-mail: gud.erl@mi.is National representative from Iceland to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : no representative * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: no representative * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: no representative Note: Previous name: Daufblindrafélag Íslands, Deafblind Association of Iceland (DBFI) Italy: Lega del Filo d'Oro. Address: Via Montecerno 1, I - 60027 Osimo, Italy. Founded: December 20, 1964 Registered: Organization -, Company number: Registration number: Date of membership: 22.10.03, Fredricia, Denmark. E-mail: info@legadelfilodoro.it President: Mario Trapanes National representative from Italy to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark: Francesco Ardizzino * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Francesco Ardizzino * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Barbara Verna Kazakhstan: Society Foundation for Social Support and Rehabilitation of Disabled People with Bisensory Disability (Meyirim) Address: 214, office 15 (for "Meyirim") Bogenby batyra str. 050012 Almaty Kazakhstan Founded: March 27, 2001 Registered: 2003 Organization -, Company number: 39032-1910-0Ф Registration number: Date of membership: 28.04.08, Zagreb, Croatia President: Galina Frolova, E-mail:glory-f@mail.ru National representative from Kazakhstan to: * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Galina Frolova * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Timur Timirkhanov Norway: Foreningen Norges døvblinde (FNDB) The Norwegian Association of the Deafblind Address: Postboks 5922 Majorstua, 0308 Oslo, Norway. Founded: October 13, 1957 Registered: February 20, 1995 Organization -, company number: 971 474 688 Registration number: Date of membership: Interim Board: 03.09.99, Tampere, Finland and Officially member: 22.10.03, Fredricia, Denmark. E-mail: fndb@fndb.no. President: Geir Jensen; E-mail: fndb@fndb.no, geir.jensen@fndb.no National representative from Norway to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Oddbjørg Nyheim * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia : Geir Jensen * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Ole Elvesveen Poland: Towarzystwo Pomocy Gluchoniewidomym (Głuchoniewidomym Aid Society) The Association for the Welfare of the Deafblind Address: ul. Konwiktorska 9, 00-216 Warszawa, Poland Founded: 1991 Registered: Organization -, Company number: Registration number: Date of membership: 22.10.03, Fredricia, Denmark E-mail: tpg@tpg.org.pl. President: Grzegorz Kozlowski; E-mail: g.kozlowski@tpg.org.pl National representative from Poland to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark: Józef Mendrun * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: no representative * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Grzegorz Kozlowski Russia: Association for Social Protection of the Deafblind (ELVIRA) Address: P.B. 9, Moscow, 127576, Russia Founded: December 24, 1992 Registered: Organization -, Company number: Registration number: Date of membership: 22.10.03, Fredricia, Denmark. E-mail: President: Sergey Sirotkin, E-mail: sir.s.a@yandex.ru, sirotkin@rehacomp.ru, oms@vos.org.ru, oms6236160@yandex.ru National representative from Russia to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Sergey Sirotkin * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia : Sergey Sirotkin * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Sergey Fleytin Slovenia: Društvo gluhoslepih Slovenije, DLAN Association of Deafblind of Slovenia Address: Linhartova 13, 1000 Ljubljana, Slovenia Founded: December 12, 2005 Registered: February 10, 2006 Organization -, Company number: Registration number: Date of membership date: 28.04.08, Zagreb, Coatia E-mail: drustvo.gss@gmail.com President: Petra Rezar, E-mail: drustvo.gss@gmail.com National representative from Slovenia to: * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Metka Knez * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Simona Pegan Spain: Asociación de Sordociegos de España (ASOCIDE). The Spanish Association of Deafblind Persons Address: Calle Prim, 3, 3a Planta, 308, 28014 Madrid, Spain. Founded: 1993 Registered: Organization -, Company number: Registration number: 117.939 Date of membership: 22.10.03, Fredricia, Denmark. E-mail: asocide@asocide.org President: Francisco Javier Trigueros Molina; E-mail: presidente@asocide.org National representative from Spain to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark: Daniel Álvarez Reyes * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Daniel Álvarez Reyes * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Francisco Javier Trigueros Molina Sweden: Förbundet Sveriges Dövblinda (FSDB) The Association of the Swedish Deafblind (New name from 01.01.2009) Address: Sandsborgsvägen 52, 122 88 Enskede, Sweden. Founded: September 13, 1959 Registered: Organization -, Company number: 802006-9780 Registration number: Date of membership: Interim Board: 03.09.99, Tampere, Finland and Officially member: 22.10.03, Fredricia, Denmark. E-mail: fsdb@fsdb.org. President: Pontus Degsell; E-mail: Pontus@fsdb.org. National representative from Sweden to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark: Linda Eriksson * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Lena Kung * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Marie Lagerstrøm Note: Previous name: Föreningen Sveriges Dövblinda (FSDB) Switzerland: Groupe d'entraide romand de sourds-aveugle, malvoyants-malentendants (GERSAM) Address: Catherine Hutter, Av. Du Grey 51, 1018 Lausanne, Switzerland. Founded: November 20, 1999 Registered: Organization -, Company number: 75098253. Registration number; Date of membership: 22.10.03, Fredricia, Denmark. President: Catherine Hutter; E-mail: cat.hutter@bluewin.ch. National representative from Switzerland to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark: Julia Roessler. E-mail: Julia.roessler@bluewin.ch. Julia Roessler, Ave de Cour 6 bis, 1007 Lausanne, Switzerland. * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Catherine Hutter * EDbU 3^rd General Assembly, May 2013, Plovdiv, Bulgaria: Catherine Hutter List of Associate Members of EDbU: A) National and affiliate organizations of people with deafblindness which are not a national member: Norway: Landsforbundet for kombinert syns- og hørselshemmede (LSHDB) Address: Skippergata 33, 0154 OSLO, Norway Founded: September 22, 1989 (Norges Usher Forening (NUF) / The Norwegian Usher Association. Registered: February 20, 1995 Organization -, Company number: 971 281 707. Registration number: Date of membership 28.04.08, Zagreb, Croatia E-mail: kontor@lshdb.no President: Åshild Johansen, E-mail: kontor@lshdb.no Norsk Usherforening (NUF) was founded on September 22 1989. The name was subsequently changed to Landsforbundet for kombinert syns- og hørselshemmede (LSHDB) on February 22, 1997. B) Other organizations: France: Association Nationale Pour les Sourds et Aveugles et Sourds malvoyants (ANPSA) Address: 18 rue Etex – 75018 Paris Founded: December 9, 1978 Registered: Organization -, Company number: Registration number: Date of membership: 22.10.03, Fredricia, Denmark (national member). 22.05.2013, Plovdiv, Bulgaria (associated member) President: Dominique Spriet E-mail: presidenceanpsa@gmail.com National representative from France to: * EDbU 1^st General Assembly, October 2003, Fredricia, Denmark : Annie Van Espen * EDbU 2^nd General Assembly, April 2008, Zagreb, Croatia: Annie Van Espen Russia: The Center for Rehabilitation of the Deaf (OTOFON) Adress: 105203 Moscow Niznya Pervomaiskaia str., 47 Founded: February 10, 1997 Registered: Organization -, Company number: Registration number: Date of membership: 22.03.09, Budapest, Hungary. E:mail: otofon@otofon.ru Director General: O.I. Smirnova. C) Individuals with deafblindness: Norway: Geir Jensen. Address: Lindebergveien 23c, 1069 Oslo, Norway. Date of membership: Registered member in the interim period. E-mail: geir.jensen@fndb.no; fndb@fndb.no [20.08.2014]